For those who may not know much about CF, I wanted to share two videos. The first is a video I made documenting some of our first year with Avery along with tidbits about what CF is (it's a confusing disease!). I hope you enjoy it:
Avery & Cystic Fibrosis from Ali Larson on Vimeo.
This video is one I've posted before, but if you've never seen it I highly recommend it. One Republic documented daily/normal moments in the life of a teenage boy here in Colorado living with CF. If you've never seen a vest before (something Avery will be getting in about a year!), or a nebulizer (something she'll get in a few years that will also be for daily use), you can see him use his here. Avery will spend often hours each day on those machines for the rest of her life. (We're thankful to One Republic for sharing this boy's story! He's also a patient at the same CF Clinic as Avery!) :)
Back to the walk - we were given at tent for raising so much money (over $10,000!!! THANK YOU EVERYONE!!!), and we were placed next to this family. They sadly lost their daughter to CF this past January. She was only 23 years old and a beautiful and smart young woman. It was difficult for me to talk with her family, but it was very special getting to help celebrate her life with them. It was also wonderful to see them helping fight this disease even after it so cruelly took the life of their beloved little girl. You are missed in this world, sweet Sadie.
And here is our team at the walk, we were so beyond blessed to have so many folks show up and support our little girl. We honestly believe that every penny raised is a penny going towards prolonging and improving her life. The Cystic Fibrosis Foundation is an incredible organization directly responsible for the major advancements already found for this disease. There are MANY things they are working on, and some that may even benefit Avery some day. We know that helping them fight, helps our daughter live.
Here are pics from our walk (and pics at the bottom of those that couldn't join us but are still a part of Avery's Army!). Again, we can't tell you how thankful we are for everyone's involvement. We will be fighting this battle for what we hope is a very long time. Thanks for joining us.
More Avery's Army members!!
So thankful for you all.
